Lancelot lived bouncing on a trampoline until he
transferred to his ball.
Yet not one of them could help me understand why Lancelot screamed, cried, throw his head back against things,
and would bite me on the shoulder in the mist of his anguish.
(Every couple of months I would recieve a “Heart to Heart”, magazine from the William’s Syndrome Association.
I would read every detail looking for a solution or new research. I really learned a lot from the other parents stories.
Every once and awhile, I would come across Sensory Integration Therapy. Some of the parents had had success with this type of therapy, so
I mentioned it to Dr. Bridgett Freeman ( Lancelot’s Hemotologist). She set up an appointment for Lancelot to be evaluated
with a occupational therapist at Nemours Children’s Clinic.
that said, ” Take me away!”She pushed him
hard in a gentle and caring way. Of course Lancelot had every sensory intergration problem possible. I mean if Lancelot has some-
thing he has it but good. She let me check out a book by A. Jean Ayres,Ph.D.. I took the book home, and once I started reading it;
I could not put it down. Nope it was not a simple story, but every page open the door to understanding Lancelot.
Why he got down on his knee’s to get over a crack in the side walk; why when we were riding in the car, and he would suddenly yell.
Why he would be having a great day( no screaming ), and as soon as we walked into a store or someone came over to our apartment the screaming would begin.
It made me love him all the more!
can help calm)
(although all of these are used in Sensory Integration therapy)
friend, teacher, or family member it is up to you to help protect them from
these triggers. They will need your help to help them learn ways of adapting to
this world. There may places and things they made never be able to tolerate.
Each day through learning and acceptance life becomes richer. Look how far
Lancelot has come.
- Sensory Integration Therapy
- Driving short distances in very light
rain (We have a convertible now)
- Bringing books, movies, and foods he
- Small trampoline to use when watching
- Large Therapy Ball (Lancelot bounces
on one while he is on computer, doing puzzles etc.)
- Avoid crowds as much as possible
- A pet (Mack our German Shepard was
perfect. For years when Lancelot was in Sensory overload, he would hit himself
in the head. But when Mack was around he would hit the dog. Note I do not
approve of this, but Mack though it was ok. It really was amazing, and I guess
me teaching him not to hit Mack… well it worked! Lancelot and Mack were like
brothers, we both miss our Mack!)
- Platform Swing
- Small brush -to brush from head to toe ( Find
a sensory Integrations sight or medical supplies)
- Therapeutic Horse Riding
- Hiding plastic toys in dry corn,
peas, or beans
- Blowing bubbles while child is on
swing. Have the child try to catch the bubbles. As the child gets older, call
out spelling words as they swing.
- Any playful wrestling
- Playing barefoot in the yard or
- Any game that is uses multiple senses
and learning at the same time helps the brain process.
- Hiding plastic toys in dry corn,
to be evaluated by a Sensory Integration Therapist to find out their own
special needs! It works or Lancelot and I would never been able to drive around
Lancelot has passion for Dairy Farming was greatly
hampered for years. The sound of the milking machines kept him outside
screaming wanting so badly to get into the milking parlor. Today one of Lancelot’s greatest joy is being in a milking
Lancelot and I have come a long way, yet over the past few years, when I least expect it
Lancelot’s evil twin emerges. For example, on our 2010 Summer Quest at the
Hoard’s Dairyman magazine office we got to meet the Managing Editor, Steven A.
Larson. Lancelot was talking with Mr. Larson about dairy farming, then much to
my horror, he started to take the books off the shelves as fast as he could,
and just laying them down instead of putting the books back where he had gotten
them. (Speed reading) I started putting
the books back. Mr. Larson said the order of the books did not matter because
some of the books had not been off the shelves in 100 years! I had not seen
Lancelot do this since he was a small child; needless to say he was in Sensory
Overload. Evil Twin equals Sensory
It is a challenge to keep Lancelot
from becoming over stimulated as we travel. He needs to be in a quiet,
controlled environment with just his books, movies, and balls to calm his
senses. I do my best, but we really need a home on wheels.